The generalizability of a participant registry for minority health research.

Lost in Translation: Piloting a Novel Framework to Assess the Challenges in Translating Scientific Uncertainty From Empirical Findings to WHO Policy Statements

Background Calls for evidence-informed public health policy, with implicit promises of greater program effectiveness, have intensified recently. The methods to produce such policies are not self-evident, requiring a conciliation of values and norms between policy-makers and evidence producers. In particular, the translation of uncertainty from empirical research findings, particularly issues of...

Retention of minority participants in clinical research studies.

Recruitment of minority participants for clinical research studies has been the topic of several analytical works. Yet retention of participants, most notably minority and underserved populations, is less reported and understood, even though these populations have elevated health risks. This article describes two related, intervention-based formative research projects in which researchers used ...

Environmental and Ecological Extra Challenges in Minority Populations; a Tale of Toxic Exposures among First Nation Populations

Recruitment of women research participants: the Women's Health Registry at the University of Michigan.

OBJECTIVE The goal was to develop the Women's Health Registry, a research participant database that prospectively collects detailed information on potential research subjects to assist in linking them with open research protocols and to assess investigator use and satisfaction with this Registry. METHODS The Women's Health Registry was launched in 1999. Women aged > or =18 years were recruite...

Perceptions of clinical research participation among African American women.

BACKGROUND Recruiting minority women into clinical research remains a significant challenge to conducting ethnically representative research. The main objective of this Office on Women's Health, DHHS-funded e-health database evaluation project was to examine African American women 's thoughts and perceptions about the clinical research process and about participation in the University of Michig...